Twenty million American adults have some degree of chronic kidney disease (CKD). End stage renal disease (ESRD) is the most serious form of CKD. It develops when total and permanent kidney failTwenty million American adults have some degree of chronic kidney disease (CKD). End stage renal disease (ESRD) is the most serious form of CKD. It develops when total and permanent kidney failure occurs causing the body to retain fluid and harmful waste.
For most ESRD patients, living donor kidney transplantation (LDKT) is the treatment of choice. Yet, racial disparities in kidney transplantation persist. In particular, African Americans have the lowest rate of LDKT among all racial groups even though their ESRD rates are three times higher than rates among whites.
A recently published article uses survey methods to probe the barriers to living donor kidney transplantation (LDKT) among African American adults receiving hemodialysis treatment at two Philadelphia outpatient clinics. In the survey, 101 African American patients were administered the Temple University Hospital Dialysis Patient Questionnaire
(DPTQ) co-developed by Temple University researchers and Heather Hammer, the Abt SRBI Group Vice President of Health. The article, co-authored by Hammer, finds that:most patients (72.3%) were interested in LDKT
but only 34.2% had asked someone for a donation
about half (49.5%) had an unsolicited offer, regardless of whether they asked
Major barriers to asking for a donation included:
feelings of guilt (56.3%)
concerns about the donor (33.3%),
reluctance to ask a potential donor for a kidney (28.1%)
concerns about their own health (24.6%)
The survey results suggest that interventions should focus on overcoming reluctance to ask for a kidney donation or to accept unsolicited offers.
The article appears in the Journal of Health Care for the Poor and Underserved
Avrum Gillespie, Heather Hammer, Sarah Bauerle Bass, Vladimir Ouzienko, Zoran Obradovic, Megan Urbanski, Teri Browne, Patricio Silva, “Attitudes towards Living Donor Kidney Transplantation among Urban African American Hemodialysis Patients: A Qualitative and Quantitative Analysis,” Journal of Health Care for the Poor and Underserved
, 26 (2015): 852–872.